Rare, but not alone.

There are over 7,000 rare diseases, affecting an estimated 400 million people worldwide—that’s 1 in 10 people. Yet, despite their numbers, rare disease patients remain one of the largest underserved medical communities in the world.

🔹 80% of rare diseases are genetic.
🔹 50% of those affected are children.
🔹 Only 5% of rare diseases have an approved treatment.

That’s not just a statistic—it’s a crisis.

We refuse to accept that. We’re on a mission to change the future of rare disease research and bring real solutions to those who need them most.

Join us. Be part of the breakthrough.